Hypermobile Ehlers Danlos Syndrome

Hypermobile Ehlers-Danlos Syndrome & Hypermobility Spectrum Disorder: Why Diagnosis Matters

April 23, 2022April 23, 2022
Chronic Pain, Ehlers-Danlos Syndrome, Hypermobility Spectrum Disorder, Road to Diagnosis

Ehlers-Danlos Syndrome, often called EDS for short, was not something I was familiar with until after I got my POTS diagnosis. I first heard about it when I saw people talking about EDS in the POTS support groups, and from reading about it, I learned that a lot of people

A Lifetime of Chronic Illness

February 26, 2022March 7, 2022
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Road to Diagnosis

When I think back to when my journey with chronic illness began, I typically say 2012 or even 2013, because that’s when my POTS symptoms first became apparent. In reality though, I’ve been struggling with numerous chronic illnesses almost my whole life. I never really thought about it that way